Ethics in NFTs medical trials — How does Aimedis shift the medical trials field to a new ethical paradigm ?

Overview

For decades, concerns about the ethics of medical trials have been surrounding the medical field. A medical trial is a research experiment performed on ordinary subjects (voluntarily or paid) for evaluating the efficiency of a new drug or treatment.

1. Ownership of data

In clinical trials, medical institutions keep the participant’s bio-specimens de-identified, following the principles of the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule (45 CFR 164).

2. Transparency of information

Transparency is a crucial part of any data transaction. While on-site clinical trials provide zero to little clarity about the secondary usage of data extracted from the patients’ experiments or their future potential, NFT blockchain technology, applied by Aimedis, brings a solid foundation of transparency for all stakeholders through:

  • Smart contracts: relegate the selling/buying process and increase trust between seller and data provider, and offer a layer of security, safety, and simplicity between both sides.
  • A decentralized ecosystem: that traces/tracks all the transactions between a seller and buyer in real-time, creating a fully transparent environment.

3. Data provider’s anonymity

Patients aren’t willing to compromise their privacy for any reason. That’s the reason behind the multitude of laws that determine the de-identification of the data-source provider.

Aimedis’ s always keeping the data provider’s anonymity. If any authority like research institutes / CRO / pharma, decided to buy their data, Patients can sell data by providing their ID while keeping their identity anonymous. Thus, they can earn money without sacrificing their privacy.

Also, each NFT is encrypted so that only the data buyer can access it while a new private key is generated each time the data is sold and passed to the buyer.

4. Data security

The issue of security is sparking many doubts about NFT novel technology. Patients might ask how much their data is safe on the blockchain market and aren’t prone to hacking and tokenization by other users who can steal their data and sell it. Also, Buyers (like pharma companies ) can question the authenticity of this data.

5 . Data traceability

For participating in an on-site clinical trial, the patients are asked to sign up a consent that accentuates their compliance to undergo the trial. But The process of documenting the consent forms is inefficient, with a great deal of redundancy and human intervention.

Conclusion

Clinical research involves many ethical issues that might limit the patient’s profit from his genomic data. Aimedis’s blockchain platform will provide the patient a full opportunity to sell their data all within a decentralized Eco-system that maintains data security, tractability, and anonymity of the data provider- All while allowing full ownership of their data.

--

--

Get the Medium app

A button that says 'Download on the App Store', and if clicked it will lead you to the iOS App store
A button that says 'Get it on, Google Play', and if clicked it will lead you to the Google Play store
Aimedis

Aimedis

aimedis.io — live blockchain supported healthcare platform with a unique take on community & technology. For patients, doctors, hospitals and more !